The CEO Arona school has held its second charity race in support of people living with Butterfly Skin, bringing pupils and the wider school community together to raise awareness of a rare genetic condition.
Known medically as epidermolysis bullosa, Butterfly Skin causes extreme skin fragility and often requires specialist care. Even minor friction can cause painful blisters and wounds, making everyday activities more challenging for those affected.
Organised by the school itself, the event used sport to encourage understanding, empathy, respect and inclusion among pupils.
The initiative has particular significance for the school, which has two children diagnosed with the condition. Specialist support staff and adapted spaces are in place to help them take part in school life and ensure their individual needs are considered.
More than just a race
The event was about more than running. It gave pupils an opportunity to learn about the challenges faced by people living with rare diseases and the importance of creating an environment where everyone feels included.
Activities like this can help children better understand differences, develop empathy and recognise the value of supporting one another.
The race also helped raise awareness of DEBRA Piel de Mariposa, an association that supports people affected by epidermolysis bullosa and their families. Its work includes providing information, advice and practical support, as well as helping the public better understand the condition.
Building a more inclusive school community
Now in its second edition, the charity race has become a way for CEO Arona to bring education, sport and solidarity together.
By involving pupils and the wider school community, the initiative helps shine a light on a condition that remains unfamiliar to many people, while reinforcing a simple message: everyone deserves the opportunity to participate, feel supported and belong.